August Warrior
Eva
Eva’s epilepsy story began two and a half years ago with a massive 15-minute tonic-clonic seizure.
This initial seizure marked the start of a very challenging period, with Eva experiencing 1,500 seizures over the next three months.
It took over a year to achieve some seizure control and obtain a diagnosis.
Eva was finally diagnosed with DOOSE syndrome, a rare epilepsy syndrome also known as Myoclonic-Astatic Epilepsy (MAE).
DOOSE syndrome is characterised by multiple types of seizures that are often difficult to control with medication.
These seizures can significantly impact a person's daily life, beyond just the episodes themselves.
Eva’s epilepsy affects her entire life, impacting her mobility and speech, and presenting daily challenges.
Despite these difficulties, Eva brings joy to everyone around her.
She has a particular love for her iPad and enjoys spending time with her sisters.
Her family is incredibly proud of her resilience and positive spirit.
Eva's kindness is evident to all who know her. In her honour, her family is committed to raising awareness about epilepsy and supporting others affected by the condition.
They aim to donate proceeds from this campaign to support beautiful Audrey (1IN25 February Warrior), extending their kindness and solidarity to another family in need.
Eva’s story highlights that epilepsy is more than just the seizures; it is a condition that affects every aspect of a person's life.
Through their journey, Eva and her family hope to educate others about the broad impact of epilepsy and the importance of ongoing support and research.