• Supporting epilepsy families

    Creating month-long collections selling #teesforepilepsy to support Epilepsy families

  • Contributing to research

    Donating $5 of every sale from the 1IN25 Collection to the Epilepsy Research Centre

  • Creating awareness & building communities

    Sharing stories of living with Epilepsy and connecting our community

MAY WARRIOR

Meet HAZEL

Hazel's epilepsy journey began in March 2022 with her first seizure. Through a blur of medical procedures, including tests, hospital stays, and even flights, her parents tirelessly sought answers.

In October 2023, their persistence paid off: Hazel received a diagnosis of the incredibly rare ATP6V1A-related epilepsy, stemming from mutations in the ATP6V1A gene.

This disorder disrupts normal cellular processes, leading to early-onset seizures, often resistant to standard treatments, along with developmental delays and cognitive impairments.

Hazel's case is exceptionally rare, with fewer than 50 documented cases worldwide and she is the sole known instance in Australia.

In response, her parents launched the Instagram page @hope.for.hazel, advocating for greater awareness and support for individuals and families affected by epilepsy. Despite the challenges, Hazel remains resilient, loving, and always sporting her infectious smile—a testament to her strength amidst adversity.

She is truly one in 780 million.

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MAY WARRIOR

Meet Otto

Otto's initial seizure came on suddenly, leaving his parents anxious and uncertain about the future.

The seizures continued, leading to further medical consultation and a diagnosis of epilepsy, which changed daily life for Otto’s family.

Focal and Absent seizures added another layer of complexity to his existing cerebral palsy, as seizures require constant monitoring.

Despite all the chaos, Otto and his family are resilient and hopeful. Throughout busy schedules and medical appointments, Otto's beautiful smile and determination inspire everyone around him. He’s a brave, strong miracle.

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may WARRIOR

Meet Sophie

Born in January 2023, Sophie faced her first seizure at six weeks old, post-vaccination.

Despite initial dismissal, jerking movements and rolling eyes prompted an urgent trip to hospital.

There, testing, including MRI and EEG, resulted in an epilepsy diagnosis. Treatment with Tegratol provided brief relief, but seizures persisted, made worse by her four-month vaccinations.

Multiple hospitalisations followed, with rescue medication administered daily.

Despite trying various treatments, including a ketogenic diet, Sophie's seizures have persisted. Genetic testing has so far revealed no answers, but her parents remain determined to find solutions.

Sophie's resilience shines through, despite developmental delays. Her mother describes her as the strongest lady she knows, a true fighter.

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1IN25 Collection

$5 from every item sold in 1IN25 collection will go straight to EPILEPSY RESEARCH 

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