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Supporting epilepsy families
Creating month-long collections selling #teesforepilepsy to support Epilepsy families
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Contributing to research
Donating $5 of every sale from the 1IN25 Collection to the Epilepsy Research Centre
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Creating awareness & building communities
Sharing stories of living with Epilepsy and connecting our community
Meet Sadie
Sadie started having seizures around 12 months old. By 14 months, an EEG confirmed epilepsy, but despite trying about eight medications, none controlled her seizures – and she has around 50 a day.
These frequent seizures, including absence seizures brief lapses in awareness greatly affect her learning and require constant supervision to prevent falls.
Despite her condition, Sadie remains happy, determined, and confident. Her family, deeply affected by her diagnosis, now focuses on dietary changes rather than medication, which has proven more effective.
Sadie loves her pets, car rides, bubbles, Blippi, and kindergarten, and is always smiling and laughing.
Meet Lilly
Lilly, an 18-year-old from the Gold Coast, has faced significant challenges with epilepsy due to Glut 1 transporter deficiency disease, a rare genetic disorder.
This condition disrupts glucose transport to the brain, causing severe epilepsy with up to 50 seizures a day.
Her seizures began at age 7, evolving from absence to tonic-clonic types. Despite difficult treatments, medication side effects and bullying, Lilly threw herself into writing and published her book, "Chelsea the Interrupting Cow," in 2019.
She also founded the YouToo movement to promote kindness. After success with the keto diet, followed by heartbreaking setbacks from the COVID-19 vaccine, a new medication has made a massive difference.
Lilly is now pursuing a career in Auslan and remains hopeful for a future cure for epilepsy